The cousin of a four year old girl who died of a mystery condition took part in an ultra-marathon across the desert to raise funds for Demelza.
Kerry Randall ran, hiked, walked and crawled 273km through the desert from the Grand Canyon to the Grand Staircase carrying a backpack containing food and bedding.
She has raised over £2,500 for Demelza Hospice Care for Children in memory of Keira Turner from Maidstone.
Kerry said: “It was an honour to support Demelza in Keira's memory. It was an incredibly tough but rewarding challenge and when things got really hard, I thought of Keira and Demelza and it pulled me through. No words can express the thanks our family have for the staff at Demelza and this was my small way of combining a fantastic adventure with a very special cause’’.
Keira died at Demelza’s hospice in Sittingbourne in February 2011, a week before her fourth birthday of a condition which remained undiagnosed despite almost a year in hospital, biopsies and countless tests.
She was just over 6lb when she died as her body was unable to put on weight despite her being fed a high calorie diet and glucose. She was still wearing early baby clothes.
She couldn’t walk or talk but mother Emma added: “She could still get what she wanted. She was a little monkey.”
Keira did defy doctors’ expectations by being able to sit.