Teenager Lucy has started writing a blog about her experiences of Demelza.
Click here to read her thoughts and see why your support makes such a difference to young people like Lucy.
Demelza Hospice Care for Children was started by Derek and Jennifer Phillips in memory of their daughter, Demelza, who sadly died at the age of 24. Find Out More... There are many ways we can help your family. Please get in touch to find out more.
Children's hospices support children and young people (0-19) who are not expected to reach adulthood, and offer support to their families.
Children's hospices can differ significantly from adult hospices in that many of the conditions children and young people are suffering from are degenerative in nature and progress over many years.
This means that children's hospices have the opportunity to offer children, young people and families the chance to build memories as a family unit, undertake a range of activities that are age and needs specific that they may not ordinarily be able to access.
A children's hospice may offer complex symptom control during periods of active treatment. In many cases there is no cure. In others, treatment has been tried but failed and the focus has transferred from active to palliative care.
When a diagnosis is given, families often feel very isolated. Children's hospices provide the necessary short breaks and a range of specialist services benefiting the children and young people themselves and their wider family, which are simply not available elsewhere.
Watch the video below to find out a bit more about A Day at Demelza:
What is a Hospice at Home Service?
The service complements the care offered at Demelza Kent and Demelza South East London, with the Community Palliative Care Team going directly into the family home to provide care, respite, an on-call service and crisis intervention.
Demelza Community provides care and support based on the individual needs of the family. This is achieved through an holistic assessment and development of a care plan in collaboration with the family and other healthcare professionals. The care plan will reflect the changing needs of the child/young person and will embrace the needs of the family as a whole.
Care is provided using a variety of skills and services and is co-ordinated by a named nurse within the Demelza Community Team. The team works in partnership with families to help support and maintain family life
When a child reaches the end of their life the Demelza Community Team can offer 24 hour end of life care at home followed by bereavement support to members of the family, as required.
to find out more about Demelza's Care Services.
Demelza Kent : Rook Lane, Bobbing, Sittingbourne, Kent. ME9 8DZ Demelza South East London : 5 Wensley Close, Eltham, London. SE9 5AB Demelza Community : Langtye Farm, Langtye Lane, Ripe, Lewes, East Sussex, BN8 6BA