Families and children having access to the services of Demelza Hospice Care for Children are:
"families who live in the South East of England and have a child or children (birth-19years) diagnosed as having a limited life expectancy."
- Demelza provides care for children/young people aged up to 19 years with life limited or life threatened conditions.
However, we now also provide outreach support to our young people up to the age of 25. The purpose of this is to support young people transition into adult services where it is needed.
Demelza will apply the following criteria:
1. The South East of England is defined as Kent, South London, East Sussex and part of Surrey.
2. When young people reach their 19th Birthday, they will be reviewed individually in liaison with the relevant Registration Authority.
3. New referrals will not normally be accepted for young people over the age 16 years, unless the young person is receiving end of life care.
4. Limited life expectancy in a child or young person is defined as being the result of any condition, on its own or in conjuction with others, which makes it unlikely that the child will live beyond their teenage years.
5. These conditions are likely to include muscular dystrophy, the mucopolysaccaridoses, cystic fibrosis and other genetically determined disorders, congenital abnormalities of various systems such as the heart, kidneys, liver and central nervous system, as well as acquired diseases such as cancer, chronic renal failure or heart disease.
6. The needs of each family will be assessed during either a visit to the hospice or a home visit to the family by a member of the Care Team, except in emergency situations.
7. All decisions regarding the admission of families to the service will be taken by the Referral Panel comprising the following people:
Head of Care
Deputy Head of Care
8. In an urgent situation, a decision may be made by any two members of the Committee, one of whom must be the Head of Care or the Deputy Head of Care.